We are getting adjusted to Noah's new feed routine. He is starting to handle his thickened bottles better (he is only throwing his bottle a few times instead every second). As for foods, well we are working on increasing his caloric intake by feeding 3 bottles of soy pediasure/day and adding duocal to each feed. His appetite is still fair but improving. He still will only eat oatmeal, Stage 2 fruits and of course ice cream.
We hope and pray the thicken liquids and medicine will help eliminate his aspiration/reflux and any discomforts. I do still worry as he continues to throw up long after his feed. I continue to keep my fingers crossed that in time these changes will work.
I want to thank everyone for their thoughts and prayers while Noah was in the hospital. The entire staff on 7 W provided such great care and support during his stay. I'm grateful to have met Dr. Z and can not thank her enough for the genuine concern, kindness, care and time she spent with Noah and me. What an amazing physician and such a caring person. She is certainly a blessing in our family's lives. She is also someone I consider my friend.
Speaking of friends, Noah certainly had no problems making lots of friends despite being quarantined. He would just stand in his cage ( oh I meant crib) and wave to everyone that passed by or stop in. When we did escape from his room, he was required to wear a mask. We had lots of fun keeping it on him and he made lots of people laugh trying to take it off.
Also if you could spare a few extra minutes and stop by a few of Noah's friends blogs as they could use a few extra prayers right now. Rhett who is recovering from surgery, Parker who has an upcoming surgery and Chelsea who is finishing up her 5th round of Chemo. Thank you, Cheers Terry
5 comments:
HEY! I recognize that CHOP gown! Kennedy wore one just like it last week! Congrats on the tooth!
He's so cute w/his mask :) I'm sure he had no problems making friends cutie that he is :) I hope the thickened liquids do the trick!
We got your cards today! Thank you so much! I'll try and email you in the next couple of days :)
Hopefully the thickened liquids work. I think we are going to have to do that with Aiden and water/juices.
Happy toothers! Those photos? PRICELESS! Hugs to that boy of yours and best of luck on the thickened liquids. Elliot will take NOTHING besides Pediasure. No food at all.
Those are some very cute picts of that sweet boy!! YAY for the tooth!!
I hope the thickend liquids work well for him. I have noticed a big difference in and his breathing since he is now getting all of his liquids through the NG tube.
I am glad he is home and hope you guys continue to do well. Thank you for the thoughts and prayers. We love you guys!!
((HUGS!!))
Pam and Rhett
Post a Comment